Imagine if you had to give a speech in honor of your cancer remission. What would you say?
Check mine out.
Yours Truly,
pj
www.behindthepinkribbon.info
www.supportyoursurvivor.org
facebook.com/pjledar
twitter.com/atpinkribbon

We Support You!
Next month begins the countdown to October--Breast Cancer Awareness Month. Just think, a whole month dedicated to Breast Cancer Awareness! We could really do some serious ‘awareness’ if we put our communication skills to the test.
This is a good time to schedule a mammogram, a physical and learn how to do a MONTHLY breast self exam too. Make sure you talk to your health professional as well. I review vast material on breast health care all the time. But I found this easy to-do article written by the CYWH Staff at Children's Hospital Boston to be the best one yet.
How to Do A BREAST SELF EXAM
Lying down:

First, place a pillow under your right shoulder. Next, put your right hand under your head.

In front of a Mirror:

In the Shower:

Again, make sure you keep an open line of communication between your doctor or health professional.
And Friends, take a moment and listen to this video below on breast exams! It is so funny just to watch, but it gets the message across.
Oh, and back by request—Sex and Cancer/ Relationships- interviews with Survivors and their partners—this should prove interesting! Stay Tuned!
Pro Self Pro Health! Seek Doodles For Cancer!!
Hello Friends,
You all know that I am a Clinical Trials Participant for life, and for my new friends this means that every few months I climb up on the exam table and let my 20 Mule Team poke, prod, scrape and scan my body. It is an unwritten understanding that I continue my follow-up appointments with them. Though, I have to admit I am not all that willing at times. To be truthful, these exams are time not a favorite of mine. But I go because my long term survival FOLLOW UP is IMPORTANT. It means that the Clinical Trial that I participated in WORKED. It means that the investigational medications WORKED. And it means that MY 20 Mule Team WORKS! I have been in remission for Stage 3b Breast Cancer for over a decade and counting! And some of you know that I was diagnosed with thyroid cancer last year. Thankfully, it was caught very very early. I knew that because my 20 Mule Team has their stuff together and when the symptoms started, I wasn’t scared as much. I felt empowered to ask and seek help. That’s because it was drilled into me early on that COMMUNICATION was VITAL in me staying ahead of any reoccurrences or changes in my body. Yes, it’s true…at times I get to practice what I preach.
Although, I am embarrassed to say that I am the first to procrastinate on my health, I do try to motivate others to do as I say and not as I do. Does that make sense? I have seen first hand how early detection works. I’ve come to believe, it is the difference between having a natural bra shape verses one that is reconstructed. I wish I had a 20 Mule Team way back then. Perhaps, early detection would have spared me.
But on the other hand, I have became appreciative of the simple things. Like a smile or the sunset. Or like allowing people to care for me. And that brings me back to having your own 20 Mule Team. As an advocate of Breast Health and Clinical Trials I support 20 Mule Teams. They are made of doctors, nurses, lab techs, radiologist, pathologist and supporting staff give or take. They allow a face to put on your recovery. They offer guidance and vital interaction. But the funny thing about a 20 Mule Team is that they can be made of ANYBODY that positively cares for you and the greater good. The beauty of a team member is that there are only two rules to follow. 1-To have the patient’s /friend’s best interest at all times and 2-To provide unyielding support. It’s that simple.
20 Mule Teams come in all facets of your life. Most people lump them into categories, like best friends, support groups, sororities, you get the picture. Lately I have been expanding my external 20 Mule Team. I had the privilege of meeting a very unique person and his associate the other day. We talked for a while about my mission to advocate Education and Clinical Trials. And when I stopped talking long enough, I found that we were on the same page as I was in educating the minority community as well. Their programs were more structured than mine, but they didn’t make my mission seem any less important. I admire their approach to this complex situation. Minority Health education is wrought with cultural and social barriers. We passionately discussed our surprisingly mutual viewpoints and goals. And by the time the meeting was over, I felt that we had connection. They work on a larger scale then mine, but the meeting was proof positive that the small fish in the sea are as vital as the large ones. Perhaps the next time we meet, it will be to celebrate the collective awareness across the board regardless of social and cultural differences. So I humbly submit them for membership.
Their support makes them the perfect candidate for my ‘EXTERNAL 20 MULE TEAM!’
Pro Self with Pro Health!! Check Out My New Friends!
Hello Friends,
Yeah, I know..it’s been awhile. I have been very busy with life and many of you can relate. I’m working on the new book, a thriller with twists and turns plus trying to finish up my research/notes on the family and cancer book that is due out next year.
I’m knee deep in the rat race. And I’m the one always preaching about balancing daily life and being a cancer survivor. ..go figure….Each step is supposed to be thought out before I make that move, and when I do.. all goes ok, …..BUT there are times that I think I can do it all and rush out there without plans. We all do it…..don’t be shocked! I don’t get enough sleep and I don’t eat right all the time. Finding that balance for my quality of life is a daily chore in itself. But if I want to live, I have to do it. My natural nature is not lazy, so it is often hard to slow down. This puts my body in a ‘push me pull me’ state constantly. On top of that, chemo brain sets in too. At least I like to claim that when I can’t remember anything.
So I keep a daily reminder book and lots of notes to stay on track. I depend on my support team to drag me out of bed and push me to work. Often, they are the very ones that are holding me up, you just don’t see them because they are for my eyes only.
I encourage each of you to set up your own support team. They can be your mom, (just make sure she is open minded) your best friend, (same rule applies) and perhaps the mailman too. What I am saying is that your support team needs to be a positive one. They can’t judge you, especially in public, make you feel ashamed or stupid, but most of all, they must love the new YOU. Because when the dust settles, and you actually SEE what you are capable of surviving, you won’t want to be around negative energy. Stay positive, move forward and you too can be in a constant state of ‘push me/pull me’.
What out cancer!! WE ARE BREATHING DOWN ON YOU FOR THE CURE!!!
Hang in there!!!!!!!!!!!!!!
OCTOBER IS BREAST CANCER AWARENESS MONTH
Hello Friends,
I was interviewed to day by a cool lady by the name of Yvonne Ortega. She is an author too. Yvonne has a website, www.yvonneortega.com and a blog radio show. She’s been around the cancer world for several years now, and considered somewhat of an authority of faith and cancer. I liked Yvonne.
We talked about Clinical Trials, my book, the Support Your Survivor program and my Faith. She has great communication skills and radio suits her very well. After all, she put up with me for 30 minutes. In the interview she asked what made me write about Clinical Trials. I gave her the usual answer, but it’s really simple when you get right down to it, AWARENESS AND OPTIONS.
If more of us thought of everyone else and not always about themselves we would probably have found cures for many ailments and diseases by now. We should be talking and praying more. We need to be aware……we need volunteerism..and we need more caring. Constant budget struggles and negative thinking is what bogs progress down. I know we have to work and to feed our families, but let’s not get too busy we forget until illness comes a ‘callin’.
Let’s get together on the issues and figure out a way that everyone can see the doctor and not be intimidated by cost and lack of knowledge.
Have Faith, people……..Yvonne’s message today was not just about me BUT what we should stand for. You can listen to my interview in the blog talk radio archives.
Hello Friends,
Well, I’m at it again, I guess I will never learn! Here it is at the end of the month, and I am STILL running hard and sleeping less. Yeah…. I know… this is not good for my body, and I’m the one preaching health and taking it slower ! Go figure…..
For those of you lucky enough to have Tuesday June 29 at 10 am free, I would love for you to join me in a live interview with Hope For The Journey. The blog radio show is hosted by my good friend Yvonne Ortega. The show is for women who have been diagnosed with breast cancer and walks with them from diagnosis to survival. Yvonne has a unique way of making her guests feel comfortable and appreciated for sharing their experiences. Every time I listen to her interviews I get a deeper sense of pride about being a survivor.
We probably will talk more about my projects than my book, but that’s ok. In case some of you didn’t know, I am involved with the ‘Support Your Survivor’ program. It is network of cancer survivors, therapists, some medical folks and a handful of small community based organizations. The heart of our mission is to assist low income breast cancer patients with a prosthesis. It’s really that simple. We are working on the website, but you can see some info on my site, www.behindthepinkribbon.info.
I am looking forward to talking with Yvonne and her audience. As you know, since becoming a survivor, my life has taken a totally different turn, and although I am still in remission, I continue to live with the fear that the cancer will return. And this is where true faith comes in, and believe me..I use it every day. That is why the ‘Hope For The Journey’ blog talk radio show is so important. It gives cancer diagnosis and survival a voice. So you can bet it’s going to be interesting talking with Yvonne!
Feel free to join us! Check out Yvonne’s site at www.yvonneortega.com.
Link to the show, Tues June 29, 10 am www.blogtalkradio.com/hope-for-the-journey
The call in number is 347-996-5368.
Hope to hear from you!!
ps. I will finish my series on Clinical Trials and Me next week.
Empowerment…. Education…..The series continues…..
Hi Friends,
This past week I saw a preview of a documentary called Not As I Pictured It, by John Kaplan. It’s a short film about the effects of cancer thru a photographers lens. It was provoking and yet easily relatable, especially with yours truly. I don’t think the photographer had any particular sex in mind when he filmed it, and that’s what made it unique, the message came across universally.
If you get a chance to see it, please go! We need more films like this. Let’s face it, half of us out there are visual, we learn by sight.
After the film I met several interesting people involved in community outreach. These are the men and women that go into the communities and have health fairs, bring info to masses, and so on. Their job is often thankless, their only satisfaction is from direct contact. As an outreach advocate supporter, I often find that talking with people about cancer is a hard sell. Oh, people want to hear about your story, but only in phases. You see, I’m standing there telling someone about my journey, but all they can see is that I survived. And that’s the real message to them. But in my eyes, my message says you have choice in your ‘quality of life’ after diagnosis. It is up to the individual to be aware of the options of treatment available, to be open to new challenges for their health.
This is a challenge in the minority communities. I’m not sure, but perhaps the idea of health takes a back seat to daily survival. Not long ago, health care was only for those that could afford it. Hospitals didn’t welcome minority patients. This held true in Asian, African American and Hispanic communities alike. I can still see doubt and fear in some of the older members of our society even today when I speak to them about personal health. My mom has a saying, ‘we don’t speak about the unpleasant’. She grew up in dust bowl poverty. In her childhood, when a woman was sick, her options were limited. Going to see a doctor was not even a discussion. And I won’t go there as to the reasons ‘why’.
Thankfully, times are improving. And the reasons ‘why’ are constantly changing as well. A women’s first option is self education. She needs to be aware of her body changes and grab time for herself to address those changes with a doctor of her choice. Women are now encouraged to ‘speak about the unpleasant’.
I find it easier to speak to older minority women. They didn’t grow up with all the bling and media blitz. They are from a simpler time. One where people sat down and talked. A world of one on one education. That is why it is very important to support all forms of education. Be it print on paper, a seminar, video or photos, what ever it takes we need to do it to get the word out.
Women, take note! All around are resources. Walk into a clinic, ask for help. Don’t be afraid to look out for yourself. If you aren’t satisfied, get a second opinion. There are free mammograms, free breast exams, free physicals and even free lab work. There are social workers that can set you up with medical insurance, nurses that can refer you to patient assistance programs for prescriptions, even Wal-Mart has jumped on the band wagon and offers life threatening meds at a very low cost. I applaud them, yours truly didn’t have that option back then. Call your local hospital, ask for the social worker. They have a list of current programs in that facility, if not they can point you in the right direction.
Some of the neighborhood health centers have assistance as well. Local civic groups, fraternities, and churches are trying to get the word out too. You can even call the American Cancer Society. If you find a cancer education program in your area, tell someone else. Share your knowledge. Hand out flyers on free health info. Even the radio sky jock himself Tom Joyner, says ‘Take A Loved One to the Doctor!’ Go to free health fairs, ask your doctor more questions, and step up to your health.
Most of all, you can talk to each other about your health concerns. Sister, we are each others’ strengths and weaknesses. We are linked together and cut from the same cloth. Encourage the older women in your family and neighborhood to be informed.We may look different outside, but inside we are moms, sisters, daughters, grandmothers, aunts and friends.
We work together, we cry together so why not get empowered together?
Remember, Support Your Survivor….
American Cancer Society 1-800-227-2345 Just give them your zip code and ask for the programs in your area.
They are researching new meds to treat and cure cancer! And very nice too!
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Hello Friends,
This is the first part of a series of blogs I’m doing on Health and Welfare of a Woman.
Part of being a clinical trials survivor is getting the word out. It is not enough to talk to your family or your friends, you have to let everyone YOU know and WHO they know that participating in a clinical trial is rewarding and helpful. I know a lot of you are uncomfortable with the idea of clinical trials, but there has been some massive changes. Every trial goes thru years of research and lab testing BEFORE it is even considered for patient participation.
Every trial is monitored by the FDA and the medical community plus several outside organizations who eagle-eye every thing the researchers can think of. Of course, yours truly didn’t think about that stuff when she jumped in. I went because at the time, my survival options were less than 20%. And that included no insurance and financial ruin. Yet I am still here!
True, Faith played a big part, but I have to admit I did trust the doctors more than my faith because I felt abandoned. I just couldn’t wrap my brain around the fact the good Lord let cancer happen to me. But thru it all I rose to be a stronger person with several perks.
1-I can justify my ‘jacked up’ hair due to chemo reaction.
2-R & R is an important step to recovery, take advantage of it. Sleep longer, move slower, vacation often, send an annoying person packing because you need the rest..you get my drift…
3-I ‘gained’ weight due to my compromised lymph edema system. I get comfort instead of criticism for the weight gain. Though sad… its true. I experience the joy of shopping every time I swell!
4-I can be crazy, yell and scream. I'm entitled, I saw hell and survived.
4-Your results benefit millions not just you. Where else can you make that claim? And they are forever.
5-My survival is a tribute to Faith & Clinical Trials. I’m here because I made the decision to take charge and have some say in my cancer treatment. I was blessed because the good Lord and twenty white coats decided I was worth it.
What do you think of Clinical Trials? Better yet, Aren’t you worth the risk?
How are you?
It isn’t enough to just walk by someone and nod a greeting. Both of you keep going totally obvious to the opportunity of meeting someone new. I am not saying that everyone you encounter on daily basis is ok, you have to rely on your own moral compass for that, but every now and then stop and say hello, how are you doing?
On an average day I may speak to over 50 or so people, the exception being my seminars. And I have come to the conclusion that most people are lost too. Just like me. Since we aren’t privy to the good Lord’s plans, we just wander around life. In the way the Indians circled the wagons.
I think we need to stop a moment and look at the people that cross our path. For example, the other day I met an engaging older lady at the gift shop. She had an affectionate manner about her, but professional as well. We struck up a conversation that lasted a good half hour. We talked as if we were old dear friends. When I left the gift shop I reflected that if I done what I normally do and just nod and walk by I would not have had a pleasant morning and a reminder that we are all in this life together.
So I challenge you, dear friends, to say hello more often, smile every day and try to remember that just one nice thing you do could make someone’s day brighter.
Isn’t great we are all different?
Have a Great Day!!!!!
Hello Friends,
What had begun as a few research articles have turned into a new book. As if I don’t have enough to do, the good Lord has seen fit to give me more to write about. It marks a cumulative journey of sorts. My new book, due out 2011 will usher a new page in my life. It is about families, cancer and crisis.
Usually, when a family is in this state the normal thing to do is retreat. We don't want to be caught in their sorrow and drama. But not yours truly !! From the moment of diagnosis, I have been drawn to families in crisis mode. I feel something in my heart to reach out and help. I DEEPLY feel that every family deserves a chance to live and grow beyond the diagnosis. So awhile back, I started to journalize their lives. I tried to understand why there is a noticeable lack of compassion when cancer comes a callin’. True, some people don’t know what to say to the family and can’t really offer words of encouragement or help. I sympathize. But it also makes me mad. How hard is it?
I am blessed this time to talk to some of the most interesting people. We hear about movie stars and other prominent people making it through cancer diagnosis all day long. And that is a good thing. But what about us ordinary folk?
Make no mistake, cancer diagnosis is frightening, no matter what stage or form it comes. And money does make a difference in the quality of care and home recovery. I have seen people struggle in shelters with an IV bag dragging behind them as they push their cart of meager possessions. And I have seen rich people leave the cancer hospital in private helicopters. Their IV bags tucked away in designer carts.
This book is about ordinary people with cancer. The average Joe you pass by. How do they make ends meet ?….. How do they deal with diagnosis, treatments, insurance, work, and the bills….spouses, kids, dogs, cats,..and the mailman…oh.. hell, just life in general when CANCER COMES A CALLING!
got you thinking….huh

Hello Friends,
Another holiday is coming and I’m behind the desk. Have no plans to hang out on the beach or fly anywhere. This holiday I plan to sit and catch up on some editing and maybe catch a movie.
Times like these make me appreciate the peace of being alone. And I could do quite a bit if I tried. But, who am I kidding?
I’m going INSANE!! Ahh, I only WANT to be alone when I PLAN it! Not when it is imposed me. Sure, I like things quiet, what can you expect from an ‘empty nester?’
But come holiday time, I LIKE the sound of a family gathering, the smell of burgers and the feel of a cold drink.
So this year, I won’t get to hear those sounds or taste those burgers. Instead, me and roman noodles will cozy up to my computer and pound out the keys.
Try not to think of me, but if you do…..all I ask is that as you belly up to the bar….and take a sip for those that can’t be there.alone, holiday
Check out my next blog on Mike’s Family
www.behindthepinkribbon.infoalone, holiday