Saturday, October 29, 2011

Running For The Cause

Hello my friends,
Yesterday, I found myself observing a sea of running pink t-shirts.  The large group weaved in and out the garden maze as if hypnotized. Their faces focused and sweaty. They came in all sizes and  shapes. Big, little and small.
Men, women and a few kids all going in one direction, going for one solution,
in the misty rain.  At least that's what the banners and flags said.
The pink t-shirts were running for the CAUSE.  Now that being the general idea, let's look at the pink t-shirts on the side. These people weren't running. Just standing or yelling. They didn't look passive or aggressive. But they looked PASSIONATE as if that moment meant everything.  I couldn't hear the exact words, but I felt the emotion. Wasn't hard not to like them. They provided an electric atmosphere!  And I admit I was 'caught up' too. I felt my foot tapping to the rhythm of the cause.
No matter how many times I see a RACE FOR THE CURE, it simply amazes me that complete strangers would be out there fighting for the SURVIVAL, running for the SOLUTION, and CARING about the effects.
For that moment in time, it doesn't matter about the color of your skin, the knot in your pocket or the weather. There are no obstacles. Just love and support.  One positive goal and many positive directions for the cause.

Breast Cancer Awareness Month reminds us that everyone is in this boat together. It's one of the good things about life!

See you at the next run!
pj

Wednesday, July 13, 2011

CSHB669 Patients Right to Know Stuff

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http://www.texasoncology.com/
Hello Friends,

Normally I try to write about the quirky side of Cancer Survival, but today I want to say a few words about a serious matter.
I don't know if any of you are familiar with the Texas House Bill 669. Or known as CSHB669. This bill mandates that physicians provide a description of each reconstructive option (pertaining to Breast Cancer) including information on insurance coverage before scheduling a surgical procedure. There is more to this, but basically this is the main drift.   I thought  this to be important to share because women in this situation  should know what is going on behind the scenes. Its all part of being informed about Breast Cancer Treatment Options. 

Like most folks, I have a Bucket List. And someday, I'd like to meet Dr. Debra Ann Patt, of the Texas Oncology Cancer Center in Austin Texas. She 'broke it down' when she wrote  to the House Public Health Committee, on behalf of Breast Cancer Reconstructive Surgery and CSHB 669.  Having personally experienced this situation, I applaud her for stepping forward.  Her April 2011 letter clearly defines the issues between WHAT, HOW and WHO should dictate options for the woman diagnosed with Breast Cancer.  Dr. Patt is definatly cut from the same cloth as my own oncologist, nurses and the 20 Mule Team.   Bravo! Dr. Patt!
And thank you to the many doctors, medical professionals, and the State of Texas for addressing this issue!
Your compassion is an example of what should be.
For more info: http://www.texmed.org/   Dr. Debra Ann Patt.
http://http://www.texasoncology.com/

till later,
pj
CEO Support Your Survivor.org
Creator, Doodles For Cancer
Author, Behind The Pink Ribbon
Speaker, EEP Program
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TMA Testimony: HB 669 Relating to Breast Reconstructive Surgery

TMA Testimony: HB 669 Relating to Breast Reconstructive Surgery

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Saturday, May 7, 2011

Lesson from Grandkids and Cancer

Funny Inspirational Cancer Survivor Blogs

My grandkids came into my life during my cancer treatments. They didn't know me as the healthy energetic person their parents did.  I guess you could say they grew up watching me fight this battle. In the beginning, I was unsure about having some knee high sprout call me 'grandma'. After all, I was still trying to trying to 'finger pop, at the do-drop inn' one weekend a month. But it didn't take long to warm up to them. Especially since they looked like me. Over the years, I have tried to educate them along the way about living with cancer. I figured they might as well  learn from me. But I never thought it would be any different.
Let me share with you the day I was educated by my grandkids. Just don't tell them I told you this.

One day I call myself  taking them with me to a radiation follow up appointment. I tried to brief them on the sad situations they may see in the waiting room and the clinical trial labs. Their expressions told me they weren't interested, but I wanted to prepare them. Cancer patients aren't always at their best.
It was business as usual in the hospital. Wheelchairs, IV's, back open gowns and masked faces. I made them sterilize and put on masks too.  From the labs, to CT scan and exams, they kept quiet. When we arrived at the radiation lab, they didn't bat an eye. Even though the room was full of bald sick people. They just sat down, opened up their ipods and zoned the world out. They looked naturally bored. And I was proud of them.

Later that night, one of their friends came by. She asked where they were earlier. My grandkids calmly said, 'at grandma's cancer appoitment'. The young lady practically fell off her chair! Her mouth opened and shut like a fish gulping for air. She couldn't believe what she heard. Immediately, she started to freak out. She barraged them with questions. Not waiting for answers she proclaimed that she had to leave because she didn't want to get cancer from them!  I knew for sure the grandkids would be upset. But they never wavered. They told her to get educated and opened the front door.
I stood at the top of the stairs horrified. I wondered how I could calm this girl and save their friendship.
But before I could intervene, she was gone. My grandkids resumed playing the video game. I continued to stand there listening for a clue to the real feelings. But nothing was said.

At dinner, I tried to bring up what happened. Neither child seemed worried. I was told between bites of food, that this was their friend's loss. Cancer was not something you asked for. It's not something you can control. You have to live the best you can with it.  And they didn't want to deal with her bad energy.
I can tell you I was slightly impressed and worried. I didn't want them to lose a friend because of my illness.
But they weren't pressed, 'it's all good, grandma, she doesn't want to listen. Did you hear her reaction?
We just let her believe what she want to, she will see eventually. It takes courage, and some people can't face that. Oh, can we finish the cookies?'  Now, it was my turn to have open mouth. How did they get so smart?
I wonder if there is a lesson in grandkids?  Do they show us another viewpoint on acceptance, is this really all there is to it? is it that simple? 
If you are blessed to have grandkids, try not to waste a minute of time learning from them. It isn't until we adults pollute their minds with prejudices and distortion that they develop ugly ways. Let's try to work with them within reason to bring acceptance to the fore front.
And after you spoil them, develop a headache, give them a big hug and lots of goodies. Then  send them home comforting in the fact of a job well done!

till next time,
pj

Monday, April 4, 2011

Mediation 101

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Hello Friends,
As usual your truely is on the go! Just returned from seeing my grandkids, yep, I have grandkids. It wasn't a happy time, but a comforting one if you can relate. Sort of bittersweet. But in the midst of all the trauma, I did learn something I wanted to share with you. Something called 'common ground'.
You may have heard about it in many ways, mine came in solutions format.
You see, there are times when this is necessary. Common ground has some main factors that have to be present for it to work. So here goes:
1-We all agree to diagree.
2-We all agree we need a fair solution. Take emotion out of the equation. Look at facts.
3-We all agree on the tools or resources at hand.
4-No changing in the middle of the stream. Like adding new terms or conditions.
5-We must take turns to speak our point of view.
6-Respect those views. Keep your mouth shut if you have a nasty comment. I had a hard time with this one...
7-Here comes the another hard part. Making a outline of what we desire. Refrain from coming across the table and choking someone! again, hard time with this.....
8-Linking resources and conditions to acheve that desire. Again RESPECT!
9-Establish a cut off point. Final decision... if in question, refer to #4
In other words, speak now or forever hold your peice!
I'm not a shrink as you can see, but  these simple steps helped me this past month from going over the edge!
But...They only apply if other people are willing to CHANGE for the COMMON GROUND!

Ps. This doesn't apply to 'family' they tend to operate on a totally different plane. And you know what I mean!
Till next time, try to stay off the 6 o'clock news! and TALK IT OUT people.....Talk it out!!!

Love and respect,
pj
http://www.supportyoursurvivor.org/
http://www.behindthepinkribbon.org/
Look out for  CANCER GIFT BASKETS
my kids book: SLAP HAPPY, a book of adventure and happiness in honor of the grandkids everywhere...

Tuesday, February 22, 2011

It's All Good

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I awoke this morning in pain. You would think after a decade of  discomfort I would be used to this.
But that's not so. My pain is always different. Sometimes, fast and numbing. Sometimes, jarring and bone chilling. Then there is the all time favorite, throbbing and steady.  I've come to the conclusion that my body is communicating in different time zones. You see, the outside of my body lives for today. But the inside, is stuck on yesterday. It has its own time clock and sleeps when it wants to. This is difficult because sometimes I need to be awake. It gets complicated when I feel groggy while I'm walking. I could easily be mistaken for a drunken person.

I'm awake at night, as if I came from the night club. My mind is wired for sound and I have a bad case of the munchies. I purposly keep the refrig empty. You can imagine what would happen if I didn't.  
I complain to my family or anyone else around. My doctors don't think I have anything to worry about.
But they aren't in my shoes. Every little pain becomes a 'what if my cancer is back?' question.

Having daily pain can be a obstacle in itself. Yes, I do pain management and I try to keep up with my appointments. But in the end, its my perspective that gives me greater comfort. It's not easy being a breast cancer survivor. We must learn to see things differently.
When it's all said and done, pain is a way the body sends signals to you.  So I'm still learning to let it operate on different time zones.  And maybe some day, I will be back in sync! Until then, its all good, at least I know I'm alive!

pj ledar
http://www.behindthepinkribbon.info/    
pjledar@yahoo.com
http://www.orangecachiropratic.com/




Monday, January 3, 2011

The Breast Cancer Survivors Creed

In case you didn't know, we cancer survivors have standards. These standards aren't meant to offend anyone, nor are they meant to apply to all cancer survivors. But if you subscribe to Survivorship 101, these should be some of your guidelines.
  1. We have the right to have a experienced caregiver. No, not your buddy's unemployed girlfriend or crazy Aunt Sue. Just because they worked in the hospital doesn't qualify them. Besides, how will Aunt Sue take care of me when she hangs at the bar all day? And I don't want to mention your friend's girlfriend.
  2. We have the right to choose. Yes, it is a given we will be sick where and when we choose to.
  3. We have the right to leave with dignity. You don't have to announce to everyone why we are leaving early. I think they get the picture.
  4. We don't have to wear a wig every time we step out the door. I hear that bald is fashionable now.
  5. We have the right to be confused. It's called 'chemo brain'.
  6. We have the right to have an 'attitude'. You spend a day in our body and let me know how that's working for you.
  7. If we ask you to smile, please do. No one is allowed to be depressed around us.
  8. We have the right to ask questions. We are not assuming anymore.
  9. We have the right to change our appearance. After all, having a mastectomy leaves you with few options.  And we are females.
  10. We have the right to have visions. Even if you can't see into the future, we believe we can.
To find out more about Breast Cancer Survivalship;  Read my book, 'HOW TO LIVE WITH BREAST CANCER'  Survival 101.
Till later,
pj
http://www.behindthepinkribbon.info/
http://www.supportyoursurvivor.info/
pjledar@yahoo.com